Video by Лекторий “Солнечные Звуки“
Нато Джумберовна Вашакмадзе — один из ведущих российских специалистов в области орфанных заболеваний у детей, руководитель отдела орфанных болезней и профилактики инвалидизирующих заболеваний НИИ педиатрии РНЦХ им. ак. Петровского РАН, доктор медицинских наук.
Научные диагностические программы МГНЦ им.Бочкова - возможность бесплатной отправки биоматериала для диагностики различных орфанных заболеваний:
Информационная линия фонда “Круг добра“ - помощь пациентам с орфанными заболеваниями: 8 (800) 201 62 26
НИИ педиатрии ЦКБ РАН, отдел орфанных заболеваний (возможность консультации детей):
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