Education Webinar Series - Clinical Trials: Open and Recruiting

Clinical trials are essential to the development of new diagnostic tools and therapies – and the expanded use of those already on the market – for those with pheochromocytoma and paraganglioma. Jaydira Del Rivero, MD, joins Pheo Para Alliance Board Chair Linda Rose-Krasnor to discuss what clinical trials are open and recruiting those with pheo para and how to find a one that’s right for you. This presentation is part of our Education Webinar Series. Questions and timing are as follows: Q 1 at 1:03:30 Can overseas patients take part in clinical trials conducted in the US? Can you tell us about what trials are recruiting in Europe and other areas? Q 2 at 1:08:16 “My oncologist has referred me fore a trial that is not specific to pheo para and requires periodic biopsies. What are your opinions about trials that are not specific to paraganglioma and/or have ongoing biopsies as a part of the protocol?“ Q 3 at 1:11:57 “Are there any vaccines in clinical trial to prevent pheo para for people who are prone to develop it due to a genetic mutation?“ Q 4 at 1:12:41 “Are there any trials for metastasized pheochromocytoma which do not react on FDG, MIBG or GA-68 DOTATATE scans?“ Q 5 at 1:14:15 “Metastatic pheo, post CVD and post PRRT x1, in lymph nodes, chest and abdomen. Doctor wants to biopsy to redo genome -- is there a clinical trial that may be appropriate?“ Q 6 at 1:17:05 “I’m a carrier of a genetic mutation associated with pheo para, but have not developed tumors. Are there any observational studies that I might be eligible for?“ A 7 at 1:18:19 “Where can persons who don’t live in the United States find more information about how to participate in a US-based clinical trial?“