9 Months and ’s story continues ❤

9 months old, 23 lbs and 27 inches long PRAISE GOD! Samara, or Miss Chubby Cheeks as I call her, continues to defy the odds. She continues working on head control, sitting, and sucking her pacifier. She has battled with pseudomonas, serratia, UTI’s, and now teething is the newest challenge. God has sustained her through it all and for that we are GRATEFUL! Stay tuned for more updates about life with Samara. Blessings ❤ #trisomy13  #alobarholoprosencephaly  #raregeneticdisorder #extrachromosome #nicu #picu #compatiblewithlife  #compatiblewithlove  #specialneeds #trachbaby #medicallycomplex #SamaraStrong Like, subscribe, share and turn on notifications for more updates. This can bring awareness to a lot of people out there that are facing similar or difficult situations and need hope. Music by: Israel Houghton - You Hold My World In Your Hands