2021 International LGMD Conference - Day 1 (from Friday, September 17, 2021)
This video features all of the programming from the first day of our 2021 International LGMD Conference, a program of The Speak Foundation. On this day, we you can find:
(1) “Welcome“ and “Overview of Limb-Girdle Muscular Dystrophies“ with Volker Straub, MD of Newcastle University (UK) - An overview of what LGMDs are, their genetics, and their symptoms. Included is an update on what has happened in the limb-girdle community since our last conference in 2019.
(2) “My LGMD Story“ with Aric Hershley (USA).
(3) “Updates on Clinical Trials and Emerging Treatments“ with Moderator Jenn Levy, PhD (Coalition to Cure Calpain 3, USA), Peter B. Kang, MD (University of Minnesota, USA), Tahseen Mozaffar, MD (University of California, Irvine, USA), Katherine D, Mathews, MD (University of Iowa, USA), and Nicholas E. Johnson, MD (Virginia Commonwealth University, USA) - An overview of treatments being developed for various LGMD subtypes and clinical trials which are being organized to test them.
(4) “Patient-Focused Sess
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